I plan to hit publish at the end of this blog.
For a couple of reasons.
1. I want to keep it real. On the very outside chance someone reads this who is learning about Autism or parenting (God help you) from the words written here, I want to be real.
2. I need to get out of my head and onto paper (virtual paper counts as paper).
3. Someday, I plan for this blog to bear witness of what life was like.
The other day the Princess and I were driving home. At some point she randomly and very rudely accused me of pulling her out of swim team and she decided, at that moment, to be mad at me.
I calmly, and then not so calmly, told her she refused to go to practice most mornings. I would force her to go in spite of the yelling and complaining. Once we arrived at the pool, she would refuse to swim. Swim team cost hundreds of dollars. We finally just stopped the madness.
She was shocked.
"I really did all of those things?"
"Yes."
"Oh. I don't remember that."
I don't imagine this will be the last time I am accused of awful parenting.
But I would be lying if I created this blog to look like each moment here is fun.
Lately, it has been almost the opposite of fun.
To be fair, we have moments that are great.
I could probably find a good moment in each day.
But I have to work hard to find that many.
Every day is hard.
Not just a little hard.
Really hard.
Autism can really, really suck.
And then I feel awful for saying it.
Here's the deal.
For the Prince - I can say Crohn's disease sucks. I can say I want to take Crohn's out behind the barn and beat the snot out of it. And in saying that, I am on his side and being a great parent.
If I say the same about Autism, I am somehow complaining about the core of my Princess and her very being.
It makes me a traitor.
But there are days, many, many days that I find this dumb disorder almost unbearable.
I feel like it holds her hostage.
It limits her potential.
It gets in her way.
And it exhausts me.
I have to be ON as a mother every single minute.
In a lot of ways it is very similar to parenting a 2 year old every single day for 12 years.
Relationships are hard.
Going places feels impossible.
People lack understanding - even people that should know better.
Help is limited.
And sometimes my big-girl-panties just can't be pulled up.
I desperately wish I could express what I mean when I say hard.
I wish I could adequately capture even a few hours of a typical day.
It just isn't possible to use words to explain.
So, I sigh, and I hit publish.
And I wait for the next funny or crazy moment to document. Because those are the moments that make this journey possible.








